Glimpses into living life with an autoimmune disease (Hashimoto's Thyroiditis), postural orthostatic tachycardia syndrome (POTS), postural hypotension and chronic fatigue syndrome (CFS/ME)...ideas, experiences, the struggles, and the successes!

About Me

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I love finding new worlds through writing and reading. I am excited by creating new flavours and tastes in the kitchen. I am fascinated by nutrition and healthy lifestyle choices. I adore my my dog, family and friends.

Wednesday 12 June 2013

Glimpse into socialising with chronic illness


I had an invitation to join a not to be missed, important and happy family celebration in the form of a high tea at a hotel on Sunday. This posed many problems for my body...preparation to get ready for a fancy tea, a long train trip to get to the hotel, an unknown in terms of the food, and hours spent away from my rest inducing couch. I was however, determined and optimistic to make it to this special do.

Glimpse into the briefest of updates


The redo of my parathyroid hormone level came back on Friday super low again. However, the other levels that usually are effected with this problem were not as out of whack as you might expect. So today, after advice from my specialist, I had more bloods taken, and will test my parathyroid level again...third time is a charm! I have even stumped the endocrinologist specialist! More waiting...more tests...more unknowns...
On the upside, the test for arthritis of the spine came back negative, so that is a win right there.