Glimpse into defining ourselves through chronic illness

I read some advice recently about not letting your illness define you. This initially sounded logical, and quite a basic instinct. However upon mulling it over, I started questioning the feasibility of this concept, when you are deep in the throws of a chronic condition.

Glimpse into the misconceptions surrounding pushing through chronic illness

This morning, my mum and I were talking about people's perceptions of you when you have a chronic health problem. I know that I have touched on this before, but when you are living with an ongoing issue, it is tough enough without having to deal with people's misconceptions and judgements. We came to the conclusion that no one can really understand the situation unless they actually live through it, or are very close to someone living with it. Mum is the closest person to me in this process, and she even admits to sometimes not understanding, but she truly gets the roller coaster, the hard times, and the frustrations.

The most difficult thing I find that people don't understand, is that some days I can push through, and others I can't. I am one of the lucky ones. Some people with chronic fatigue, pain and fainting issues are in bed all day, every day, and basic things become mammoth tasks. Yes, I can sometimes have a couple of hours where I can put on a brave face, smile, and have fun, or do gentle chores. But what some people don't see, or don't choose to acknowledge, is that the process of getting myself ready, out of the house and to that point was a huge effort. They also do not see that during those smiles I am often feeling bad, and afterwards, I rest on the couch or in bed for hours or days. Sometimes, I do have to cancel plans, because I just feel too bad that there is no pushing through. But on days I can manage to push through, and hide my paleness and dark eyes with makeup, I don't miraculously feel 100%! Maybe that is part of the problem, because I do not voice and make known the invisible symptoms to people around me, or I will say that I am feeling better than I actually am. But I don't want to be "that sick girl who is always complaining"!

Glimpse into a life transformation

As I deal with a chronic illness that prevents me from taking part in activities that I once loved to do, I take inspiration from people who have managed to change their bodies into something amazing. Whether it is due to chronic illness, a busy and hectic lifestyle, poor choices, or a lack of resources and opportunity, there are so many reasons why people can find themselves in a body that they are less than happy with. I believe that we can all work with what we have and improve the fantastic homes that we live in - after all, it is the only one we will ever get! Whether this means that you will be able to get out of bed for a few hours a day, or whether it means taking part in an ironman, there is a level for everyone that we can aim for, and do everything in our power to reach.

I was lucky enough to interview a woman who has turned her body and life around. She describes her health in the past to have been appalling. She spent years heavily binge drinking two to three times a week, as well as smoking two to seven cigarettes a day, plus an extra pack on a night out. She ate fast and processed foods regularly and took no notice of what was in the food, such as additives and sugars. Her name is Gabrielle, and she decided, while sitting in the smoking area of a pub, intoxicated, that it was time to make a change. She is not only improving her body for her health, but will be competing in the INBA 2013 QLD State Championships for Body Building. What a goal!

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This is where Gabe found her body to be when she decided enough was enough! These are photos that have motivated her to keep going with her change.

Glimpse into chronic illness guilt; it's a fine line

This chronic illness thing can really get you feeling ticked off at times! I feel like I get a grasp on how to handle things, and then something happens and bam, I am back to feeling alone, and unsure of how to get out of this never ending tunnel. I am not writing this for pity. I want people in similar situations to hear this and know they aren't alone. And maybe our shared experiences can come up with a way of dealing with it all.